How do you know what to do when someone you love is dying? Losing someone you love is one of the hardest experiences you will ever go through. When that time comes, please remember that you are not alone. The most important piece of advice we can give you about what to do when someone you love is dying is to take your cues from your loved one. Listen to them. Perhaps they want to talk about it; perhaps they don’t. Maybe they want to spend every moment they have left living life to the fullest; perhaps they want to spend their time surrounded by the people, things and animals that they love. How we respond to death is influenced by our own life experiences and beliefs around death – everyone responds differently. We encourage families to have conversations about death and what their final wishes are long before that time comes. Often we find that people who are dying want to talk about it, but they are worried about upsetting the people that they love. They may worry if they talk about their impending death that their loved ones will worry they have given up hope. While these conversations can indeed be difficult, it’s important to allow these discussions to happen and can be a valuable experience for both you and your loved ones. When someone you love is dying, their needs and wishes must be respected and come first. It can be easy to get swept up in your own emotions, but it is vital that everyone involved remembers that it is the person dying who should remain at the centre of all conversations and actions. If someone you love is dying, you might not feel prepared or ready for them to go. Please know that this is normal, and support services are available to help you during this time. Disease related charities such as the Cancer Council, or your local hospital’s palliative care team will be able to give you guidance and support during this time, not only about how to look after the person in your care, but also about how to look after yourself. If you’ve never lost someone close to you before, being around someone who is dying can be a frightening experience – if you feel this, it’s important to realise that it’s normal, and not to be ashamed of your fears and feelings. We suggest that you learn what to expect in the days, weeks and months ahead to allow you to ease your fear and confusion. Doing so will also help you to plan for the journey you and the person you care about are to go on together, and for the feelings and experiences that will happen during this time. Talking with someone who is dying We understand that talking with someone who is dying can be frightening. It’s normal to feel anxious, especially if the person is someone you love. Virtalhospice.ca suggests letting the person know that you are … Read More
Dealing with anticipatory grief
What is anticipatory grief? We all dread getting the heartbreaking news that someone we love is terminally ill. Did you know that grief over the loss of the person with the terminal diagnosis often starts as soon as we get the bad news? Most people are familiar with the term grief and what it means, but many of us have never heard of anticipatory grief. Anticipatory grief is mourning a loss of something before it is gone. Chances are, even if you’ve never heard of anticipatory grief that you’ve experienced yourself if you’ve known the loss of someone you love was imminent. Anticipatory grief doesn’t just apply to situations involving a terminal illness such as cancer. You can also experience anticipatory grief when a loved one has an illness that changes their personality, such as Dementia. Not everyone experiences anticipatory grief, but if you do it’s important that you talk to someone to help you deal with it. What causes anticipatory grief? Anticipatory grief can come about for several reasons, and it may not always be the loss of your loved one’s life that you are mourning, at least in the beginning. When someone you love experiences a life changing or terminal illness, life changes for everyone around them. It may be that you are mourning for the life you had “before”, especially if you have become that person’s carer. It is natural to miss what was and for wish to things to go back to how they were if life has changed dramatically. You may feel that you have lost your sense of freedom and that you are burdened with the extra responsibility of caring for your ill loved one, and this in turn may bring feelings of guilt. However, feeling like this is a very normal response to such a big change to your life. Healthdirect.gov.au also states that you might grieve for the memories you share with your loved one, particularly as they lose their independence, their memory, and their ability to recognise you. You may grieve for future plans that will never happen and experience intense and conflicting emotions. Symptoms of anticipatory grief If you are dealing with anticipatory grief, it is likely that you are experiencing a wide range of emotions about the impending loss of the person you love, or, in the case of a permanently personality changing illness, the loss of the person as you know them before they are truly gone. You may feel anger, fear, resentment, guilt, dread, powerlessness and anxiety even though the person is still alive. Writer Angie Drakulich shares her experience with anticipatory grief for her father in an article published on the website Psycom. She writes, “[These thoughts and memories] invade my mind as I try to fall asleep and they are the first images that appear when the alarm sounds. They cloud my vision as I drive from home, to work, to the grocery store, and they emerge through tears as I try to get away … Read More